CONGRESOS, JORNADAS Y CONFERENCIAS

 

 

NORD Celebración de ‘Partners in Progress’ 2011
17 mayo 2011
Washington D.C. EEUU
http://www.rarediseases.org/news/events
 
3er Simposio sobre Enfermedades del Desarrollo Sexual
20-22 mayo 2011
Lubeck, Alemania
http://www.eurodsd.eu/en/9384.php
 
Novena Conferencia Científica Internacional sobre Telangiectasia hemorrágica hereditaria
20-24 mayo 2011
Antalya, Turquía
http://www.hht2011.org/
 
Conferencia Europea sobre Genética Humana 2011
28-31 mayo 2011
Ámsterdam, Holanda
https://www.eshg.org/eshg2011.0.html
 
Cumbre Mundial sobre Medicamentos Huérfanos
31 mayo – 1 junio 2011
Frankfurt, Alemania
http://orphandrug-summit.com/
 
Junio 2011
 
1ª conferencia paciente-familia aHUS
11 junio 2011
Newcastle upon Tyne, RU
http://www.ahus.org.uk/
 
9º Congreso Internacional del Grupo de Screening Prenatal
19-21 junio 2011
Barcelona, España
http://www.meetingpharma.com/ipsg.ispd.barcelona2011/home.html
 
47ª Asamblea Anual DIA : Convergencia de Ciencia, Medicina, y Salud
19-23 junio 2011
Chicago, EEUU
http://www.diahome.org/diahome/FlagshipMeetings/home.aspx?meetingid=23753
 
Inauguración del Centro Piloto de Referencia de Enfermedades Raras/Conferencia sobre Enfermedades Raras
28 junio 2011
Zalău, Rumania
http://apwromania.ro/
 
July 2011
 
6ª Conferencia Mundial del Síndrome de Cornelia de Lange
27-31 julio 2011
Copenhague, Dinamarca
http://www.cdlsworld.org/xwiki/bin/view/CdLSWorld/World+conference?language=en
 
Agosto 2011
 
Conferencia Europea sobre el Síndrome Postpolio
31 agosto – 2 sept 2011
Copenhague, Dinamarca
http://www.polioconference.com/
 
Septiembre 2011
 
3er Simposio Internacional sobre Feocromocitoma y Paraganglioma
14-17 septiembre 2011
París, Francia
http://www.isp2011-paris.fr/
 
2011 Congreso Europeo Multidisciplinar
23-27 septiembre 2011
Estocolmo, Suecia
http://www.ecco-org.eu/Conferences-and-Events/2011-Stockholm-Congress/page.aspx/217
 
Octubre 2011
 
NORD – DIA Conferencia Mundial sobre Enfermedades Raras
11-13 octubre 2011
Washington D.C., EEUU
http://www.diahome.org/DIAHome/Education/FindEducationalOffering.aspx?productID=26189&eventType=Meeting
 
Noviembre 2011
 
RARE2011 Journée Européenne
4 noviembre 2011
Montpellier, Francia
http://www.rare2011.com/
 
Conferencia Mundial Treat-NMD
8-11 noviembre 2011
Ginebra, Suiza
http://www.treat-nmd-conference.org/
 
7ª Conferencia Internacional de la Red Europea del Cromosoma 11 e.V.
24-27 noviembre 2011
Pforzheim-Hohenwart, Alemania
www.hohenwart-forum.de
 
Diciembre 2011
 
Congreso Internacional de la Fundación Sanfilippo de Suiza
8-10 diciembre 2011
Ginebra, Suiza
www.fondation-sanfilippo.ch/index.php/en/congres-2011
La Fundación ayuda con los gastos de viaje y alojamiento a las familias de pacientes con un total de CHF 1000 (780€) por familia
 
Autor: EURORDIS

3rd Symposium on Disorders of Sex Development

International Conference on Inherited Disorders of Muco Ciliary Clearance (Focus on PCD)

Ninth Hereditary Hemorrhagic Telangiectasia International Scientific Conference

European Human Genetics Conference 2011

The World Orphan Drug Summit

The 11th Annual International Gene Forum 2011

11th EUROCAT Symposium on Congenital Anomalies

9th International Prenatal Screening Group Congress

Eighth European Cytogenetics Conference

VI Cornelia de Lange Syndrome World Conference

Society for the Study of Inborn Errors of Metabolism – Annual Symposium 2011

European Conference on Post Polio Syndrome

3rd International Symposium on Pheochromocytoma and Paraganglioma

18th Pediatric Rheumatology European Society Congress (PRES2011)

5th International Conference on Birth Defects and Disabilities in the Developing World

Pharmaceutical Pricing and Reimbursement Information Conference 2011

12th International Congress of Human Genetics

Tuberous Sclerosis Complex Scientific Day

Treat-NMD Global Conference

Sanfilippo Foundation Switzerland International Congress

Second ASID Congress of the African Society for Immunodeficiencies

 

 

 

 

World Health Organization Sixty-fourth World Health Assembly – Geneva, Switzerland – 16-24 May 2011

The main decision-making body for the World Health Organization (WHO), the World Health Assembly (WHA), meets this year on 17–21 May in Geneva. It is attended by delegations from all 193 Member States who determine the policies of the Organization. IAPO are delighted that this year, alongside IAPO Governing Board Members and staff, a number of IAPO Members will be attending the WHA on our behalf. This is an important opportunity for IAPO to ensure that the global patient voice is heard by healthcare decision makers.

 

19th International Conference on Health Promoting Hospitals – Turku, Finland – 1-3 June 2011

With the theme: Improving health gain orientation in all services: better cooperation for continuity in care, the 19th International Conference on Health Promoting Hospitals will focus on health promoting collaboration between service providers and different healthcare professions, but also on cooperation with other settings.

 

Global Health Council’s 38th Annual Conference on Global Health – Washington DC, USA – 13-17 June 2011

The Global Health Council’s 38th Annual Conference on Global Health will focus on important healthcare issues such as chronic disease and balancing health needs. Speakers include representative from the Pan American Health Organization (PAHO), the Harvard Global Equity Initiative and the African Centre for Global Health and Social Transformation.

 

United Nations (UN) Informal Interactive Hearing on Non-communicable Diseases – New York, USA – 16 June 2011

Leading up to the High-level meeting of the UN General Assembly on the prevention and control of Non-communicable Diseases in September the UN will be holding an informal hearing for Civil Society Organisations. IAPO has registered to attend this event as it will be an importance chance to make sure that patients are involved at all stages in the fight against the growing burden of non-communicable diseases.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

INVITAMOS A TODAS LAS ASOCIACIONES, PROFESIONALES u ORGANIZACIONES QUE REALICEN EVENTOS

A QUE NOS ENVÍEN SUS GACETILLAS DE PRENSA PARA SER PUBLICADAS EN ESTE ESPACIO

 

 

E-mail: info@niemannpick.org.ar          info@npc.org.ar