LINKS DE INTERÉS

Websites de Pacientes de Niemann Pick Ara Parseghian Addi and Cassi Hempel Angel Twins Campaign for Calum Georgina's Gang Hope for Aaditya Hope for Hollie Dana´s Angels To View More Family websites Información sobre la Enfermedad de Niemann-Pick Dr Laura Liscum Laboratory Page Hide and Seek International Centre for Types A & B Niemann-Pick Disease at Mount Sinai School of Medicine NNPDF Scientific Advisory Board Dr. Richard Pagano Home Page Instituto Nacional de Salud NIH News PubMed NIH National Institute of Neurological Disorders and Stroke (NINDS) Description of Niemann-Pick News - Discovery of the NPC1 gene Research Articles NIH Office of Rare Diseases Home Page National Library of Medicine Home Page Niemann-Pick Type A OMIM database Niemann-Pick Type B OMIM database Niemann-Pick Type C OMIM database National Tay-Sachs and Allied Disease Association Inc Niemann-Pick Page Pharmaceutical Companies Actelion Genzyme Organizaciones de apoyo ACT for Families Alzheimer's Society Alzheimer's Society (Scotland) Carers UK CEREBRA Children's Hospices UK Children's Liver Disease Foundation Climb (Children Living with inherited metabolic diseases) Contact a Family (for families with disabled children) Dementia Services Development Centre Epilepsy Action Fledglings GIG (Genetic Interest Group) Livabiltiy Motobility National Society for Epilepsy Network 81 (Special Educational Needs) Special Abilities The Project - The Children's Rare Disease Network Transition Information Network (TIN) Whizz-Kidz UK Carers Online Across Trust Calvert Trust Cauldwell Children Daisy Chain Project Dreams Come True Charity Dreamz4U Family Fund Family Holiday Association Happy Days Charity Hoiday Endeavour for Lone Parents John Grooms KidsOut Kiloran Trust Lin Berwick Trust Livability Holidays Make A Wish Foundation Pearson's Holiday Fund Rays of Sunshine REACT - Rapid Effective Assistance for Children with Potentially Terminal illness Scout Holiday Homes Trust Starlight Children's Foundation When You Wish Upon A Star Willow Foundation
NEUROFIBROMATOSIS		www.aanf.org.ar
ATROFIA MUSCULAR ESPINAL		www.fameargentina.com.ar
EPIDERMOLISIS		www.debraargentina.org
ENFERMEDAD PULMONAR OBSTRUCTIVA		www.fundepoc.org
MARFAN		www.marfan.org.ar
(Mendoza) ESCLEROSIS MULTIPLE		www.asociacion-amem.com.ar
INMUNODEFICIENCIAS PRIMARIAS		www.aapidp.com.ar
LISOSOMALES		www.apelra.org.ar
ATAXIAS		www.atar.org.ar
CISTITIS INTERSTICIAL		www.araci.org.ar
ENFERMEDADES RARAS		www.reddeamor.org
TRASTORNOS DEL CRECIMIENTO		www.creciendo.org.ar
HISTIOCITOCIS		www.aah.org.ar
QUISTES DE TARLOV		http://ar.groups.yahoo.com.group/qtarlovLac/
MOEBIUS		smoebius@aol.com.ar
FIBROMIALGIA		www.groups.google.com/group/fibroamerica
HUNTINGTON		www.huntingtonargentina.com.ar
ANGIOEDEMA HEREDITARIO		www.angioedemahereditario.com
ESCLERODERMIA y RAYNAUD		www.esclerodermia.org.ar
ANGELMAN		www.sindromedeangelman.org.ar
LUPUS		www.alua.org.ar
(Argentina) FUNDACION GEISER		http://www.fundaciongeiser.org
ENFERMEDADES RARAS		http://www.orpha.net/consor/cgi-bin/index.php?lng=ES
(Colombia) LISOSOMALES		http://www.acopel.org.co/cms/default.asp?Page=166
RED EUROPEA DE DISCAPACIDAD		http://www.eurordis.org/secteur.php3?id_rubrique=199
ENFERMEDADES RARAS		http://www.enfermedades-raras.org/
ENFERMEDADES RARAS		http://www.rarediseases.org/
(EEUU) LISOSOMALES		http://www.hideandseek.org/